well Koa has been on TPN and Lipids for about 6 months. This stuff is a blessing and a curse, while it has given him calories and helped him in that regard..it has also hurt his liver and given him jaundice. His skin has a yellow look to it and the whites of his eyes are yellow as well. When we go places people always look harder and say things like, "Oh do you know his eyes are yellow?" yes we know people, we know. But anyways the reason behind the jaundice is high bilirubin levels, which is attributed to his liver being affected by the TPN and Lipids. The lipids may give him the fat calories he needs but the plant based lipids also buillds up fat in the liver which makes it harder for his liver to process out. he also was getting like 10 mL through his g- tube of pregestamil, 20 cal, and was taking about 20 mL of pregestamil by mouth 3 times a day. So it was going to be a long road ahead we were told but we all were ready for it.
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