Saturday, January 10, 2009

Koa's Story

Koa was born on April 14, 2008, at 4:35 am. He was born 14 weeks early and weighed 1lb 15oz. He was 13.5" long. He went to the NICU and was there for over 3 1/2 months. He had the typical preemie issues like a PDA(a heart murmur), which was ligated, but then he got NEC, or necrotizing entercoilitis. This is a bad intestinal infection. And Koa had it pretty bad, his intestines hadn't perforated yet but they were swelling and dying very quickly. So he went to surgery and got a silo, then those intestines were purple, not pink, so we got another call saying we need to remove these intestines too. His surgeon said if they go in and don't see any healthy bowel then he will go to comfort care... we didn't want to think of that possibility. So there was healthy intestine and once the intestines in the silo were removed he was left with 18cm. In multiple surgeries later he had a stoma, a drain for the bile to come out of from his stomach and then he got a G-tube and a Broviac. Then he was faced with being on TPN and Lipids and tube feedings. We were also told that he would probably need a liver and small bowel transplant. Koa, however, decided that he didn't want to do all that.........:D

This is where his exciting jouney begins!!!

No comments:

Post a Comment