Saturday, January 10, 2009

Latest Koa Update....

Well we went to our appointment last week and were told that Koa gained 29grams a day the previous week. YAY!! Plus he did well on his feeds and tolerated them and so we increased those again too. We went up to 50mL 5 times a day with the bottle and then by the time we come back in 2 weeks we should have him at 25mL per hour on his tube feeds. we were thrilled because the week before we were told that once you hit the 50/50 mark it was all downhill from there. well that week Koa was getting 60% of calories from the TPN and Lipids and 20% from his feeds. who would have thought that in a week things would dramatically change. This week's appointment Koa went up on feeds and this now gave him 80% of his calories and the TPN and Lipids only gave 20%. Well then we were told that they might be able to take him off of his lipids, but with news like that you never get too excited until it actually happens. Well after the nutritionist asked the GI doctor if that would be possible, he came in and told us yes it was possible and he supported that decision. SO KOA WAS OFFICIALLY TAKEN OFF OF HIS LIPIDS!!! this is going to clear up his jaundice hopefully and will reduce his bilirubin levels too, even though they remained about the same consistency throughout this process. plus we were told that at our next appointment in 2 weeks we would be introducing him to solids, but only meats and vegetables because fruits and puddings cause diarrhea.

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