the STEP procedure and Transplant Update

we were always told the Koa was going to get a STEP procedure eventually, so we asked when something like this was going to happen. The STEP procedure is when they accordion style staple the intestines and it allows the food to move slower through the intestines. well we were told that this would only happen if they hit a wall with Koa and weren't able to advance his feeds. other than that if it wasn't broke they weren't going to fix it. so this was ruled out for now and then we asked about getting the dreaded liver and small bowel transplant. We were told that most of the kids that receive these transplants are kids who are TPN and Lipids dependent and aren't able to absorb anything by mouth and Koa is able to do just that. they also said that most babies that need this don't even take anything by mouth hardly too.